Syringomyelia SaturdaysI Have A Job!

As a lot of you have been following my journey of trying to find a job via the Syringomyelia Saturdays series I thought I would use this week’s slot to tell you all the good news… someone has finally hired me! Yesterday I went to meet the “boss” of a transport association to discuss a job that would involve me looking after a disabled boy during his journeys to & from school; I don’t yet know the details of his condition/s (& even if I did I couldn’t post them on here) but I know he’s around the age that I like to work with & I’ve been told that he’s lovely!

My new boss wasn’t at all bothered by my spinal condition, which that felt amazing after what happened with the children’s home last week, & she said that I seem perfect for the job. I’ve got to have some training & background checks done over the next few weeks but I should start my actual job very soon. I want to thank everyone for their support & kind words during this horrific period of being unemployed; y’all definitely helped to keep me positive.

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Syringomyelia Saturdays
Job Interviews

Some of you may know that I’m currently unemployed & am looking for work; work preferably that involves working with vulnerable children that need extra support & care. Well, yesterday I had an informal interview with the director of a local children’s home for children who come from rough backgrounds. I was so excited! And the interview did go well, really well in-fact… until I had to spill the beans about my illnesses; namely my syringomyelia.

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Syringomyelia Saturdays

Amy’s Story

This week’s Syringomyelia Saturdays post has been written by a friend of mine called Amy; Amy is a qualified pharmacist who had to give up her profession, after years of education & training, because of her syringomyelia. Amy’s story left tears in my eyes as Ride Every Strideher experience really has been horrific – nevertheless Amy has stayed strong, even when she hasn’t wanted to. Amy has previously released the page-turning Ride Every Stride & is currently working on her first YA fantasy series (I’ve read the first book & it’s wonderful). This is Amy’s story…

This post contains animated photos of surgical procedures.

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Syringomyelia Saturdays

The Ann Conroy Trust

This week’s Syringomyelia Saturdays post is about the only Syringomeylia & Chiari Malformation organisation in the UK – The Ann Conroy Trust. If you’d like to learn more about the organisation please keep reading, & if you’d like to donate you can find information about how to do so here.

All information in this post has been taken from the official
Ann Conroy website & all information belongs to them.

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Syringomyelia Saturdays

Ross’s Story

Chiari Malformation 1This weeks Syringomyelia Saturdays post has been written by an online friend of mine called Ross. Ross doesn’t just have syringomyelia, he also has a condition called Chiari Malformation; a condition that often comes hand-in-hand with syringomyelia. There are two types of Chiari Malformation; the most common type is Type 1 & involves the back of the brain slipping onto the spinal canal; this puts pressure on the brainstem & spinal cord which causes a whole bunch of issues. You can read more on the NHS website & you’ll find Ross’s story below!

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Syringomyelia Saturdays

Sophie’s Story

Sophie is 24 & is one of the many people I have met through online support groups for syringomyelia; Sophie describes herself as “lucky” in terms of the disease as she is fairly symptom free & hasn’t suffered much because of it. Despite this, I wanted to include Sophie’s story in the collection of stories I’ll be posting for the Syringomyelia Saturdays series because it shows how diverse syringomyelia can be.

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Syringomyelia Saturdays

Syringomyelia Saturdays is a new series of posts that I’m planning to put together that will, obviously, be all about syringomyelia. This short series of posts will probably be fortnightly & will included facts about syringomyelia, its charity The Ann Conroy Trust, as well as some stories written by people with syringomyelia. My story has been active on my blog for some time but if you haven’t read it yet you can find it here:

My Neurological Fight