Sophie is 24 & is one of the many people I have met through online support groups for syringomyelia; Sophie describes herself as “lucky” in terms of the disease as she is fairly symptom free & hasn’t suffered much because of it. Despite this, I wanted to include Sophie’s story in the collection of stories I’ll be posting for the Syringomyelia Saturdays series because it shows how diverse syringomyelia can be.
That Time My Kidney Broke
A while back I wrote a post about My Neurological Fight & ever since I’ve been meaning to write about what happened to me a week after my syringomyelia diagnosis; as my exams are now over & I appear to be on a bit of a writing roll, I think it’s time I did just that… this post will be all about when my right kidney developed an abscess, started to shut down & I developed septicemia. This post is going to be very difficult for me to write & I’m going to have to rely on my mum for a lot of the details.
My Neurological Fight
I’m sure I’ll eventually use my blog to do rants about my various illnesses so I thought it would make sense to write a couple of pieces that briefly tell the different stories of what I’ve been through since I was 16! I’m not great at remembering dates but I’ll try to make it as accurate as possible.
Yesterday afternoon, at around 16:10 I took myself to Accident and Emergency. Over 6 hours later, I got home at 22:51.
I arrived at the hospital with a sample of urine and the knowledge, after taking a home test, that it was very likely I had a kidney infection. I have been advised by specialists that, due to my medical history, renal infections could cause serious damage to my bladder and/or kidneys and in the past, this has been respected by the hospital staff and I have been hooked up to IV antibiotics within an hour of arriving… Yesterday it took over five hours for me to be given IV antibiotics. The doctor treating me was wonderful and was shocked when she found out how long, after receiving my urine test results back from pathology, I had been forced to wait to be given my antibiotics. Other than that, my personal experience wasn’t that bad, but what I witnessed was.