Medical MondaysElsa

Elsa 1I genuinely can’t believe that I haven’t done this post before, because now that I think about it, it seems like this should have been one of the first things I ever discussed in this series. Yes, it is about my dog. My gorgeous Alaskan Malamute Elsa has helped medicate me just as much as my anti-depressants, pain killers & antibiotics have done in the past three years & I genuinely would be lost without her.

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Syringomyelia SaturdaysI Have A Job!

As a lot of you have been following my journey of trying to find a job via the Syringomyelia Saturdays series I thought I would use this week’s slot to tell you all the good news… someone has finally hired me! Yesterday I went to meet the “boss” of a transport association to discuss a job that would involve me looking after a disabled boy during his journeys to & from school; I don’t yet know the details of his condition/s (& even if I did I couldn’t post them on here) but I know he’s around the age that I like to work with & I’ve been told that he’s lovely!

My new boss wasn’t at all bothered by my spinal condition, which that felt amazing after what happened with the children’s home last week, & she said that I seem perfect for the job. I’ve got to have some training & background checks done over the next few weeks but I should start my actual job very soon. I want to thank everyone for their support & kind words during this horrific period of being unemployed; y’all definitely helped to keep me positive.

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Medical MondaysCaroline’s Story

This week’s Medical Monday post has been written by a very good online friend of mine; every day is a battle for Caroline due to multiple conditions, but this time she wanted to share her experience with a condition called Mast Cell Activation Syndrome (MCAS). MCAS isn’t a very well-known condition & it’s caused a lot of heartache for Caroline & her family so I’m really grateful that she’s written about it for this series.

This is Caroline’s story…

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Medical MondaysSwimming

This post is a day late as I was super sleepy all weekend & yesterday; ironically the reason I was so worn out was because of the topic of today’s post! On Friday, myself & fellow Spoonie (& good friend of mine) Emma (who you can find over at elcscience) went to our local hydrotherapy pool & had a fabulous time, so I thought I’d write about it on here!

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Syringomyelia Saturdays
Job Interviews

Some of you may know that I’m currently unemployed & am looking for work; work preferably that involves working with vulnerable children that need extra support & care. Well, yesterday I had an informal interview with the director of a local children’s home for children who come from rough backgrounds. I was so excited! And the interview did go well, really well in-fact… until I had to spill the beans about my illnesses; namely my syringomyelia.

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Medical Mondays
Useful Apps

This week’s Medical Mondays post is going to be a little bit different to normal; instead of someone’s story or one of my own experiences I thought I would put together a list of apps that are useful to Spoonies; the list includes apps that help us to remember to take our medication to apps that help you find your nearest hospital!

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Syringomyelia Saturdays

Amy’s Story

This week’s Syringomyelia Saturdays post has been written by a friend of mine called Amy; Amy is a qualified pharmacist who had to give up her profession, after years of education & training, because of her syringomyelia. Amy’s story left tears in my eyes as Ride Every Strideher experience really has been horrific – nevertheless Amy has stayed strong, even when she hasn’t wanted to. Amy has previously released the page-turning Ride Every Stride & is currently working on her first YA fantasy series (I’ve read the first book & it’s wonderful). This is Amy’s story…

This post contains animated photos of surgical procedures.

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Medical Mondays
My Return

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I’m back! …well, sort of. I decided to take a week off from posting as the renal infection I was recovering from had totally wiped me out, unfortunately I still appear to have that infection; so although I’m back, I may not be posting as much as I have been recently. Keep reading to find out a bit more about my time away!

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Medical MondaysFibromyalgia

This week I want to talk about another one of my conditions, Fibromyalgia! Fibromyalgia seems to be the most common condition I’ve got, as I see a lot of people talking about their struggles with it on Twitter… For me, this diagnosis was one of those ones that makes you realise that things about you that you thought were normal, actually aren’t so “normal”. 

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